Feel free to copy and modify the documents we have written to suit your own
organization's needs.
Site documents
All of the site-related documents including protocol, informed consent form, site information document, budget template, sample advertisement, and subject checklist can be found here.
Collection documents
All of the collection documents including case report form, confidential contact sheet, inclusion and exclusion criteria, kit details, participant unit form, and control priority list can be found here.
Researcher documents
All of the researcher documents including the application for samples and data and the material transfer agreement can be found here.
Accelerated Cure Project
Samples available: DNA, RNA, plasma, and serum from subjects with MS and related demyelinating diseases, as well as controls
Prospective collection available
Contact:
Sara Loud, Repository Director
acp-study-director_no_spam_please_@i_mean_it.no_spam_whatsoever.acceleratedcure.org
781-487-0032
Analytical Biological Services, Inc.
Samples available: Brain, spinal cord, sciatic nerve from subjects with MS and other disease states.
Prospective collection available
Contact:
Valerie Kawabata
vkawabata_no_spam_please_@i_mean_it.no_spam_whatsoever.absbio.com
302-654-4492
Asterand
Samples available: Blood, serum, plasma and urine from subjects with MS and other conditions, as well as controls
Prospective collection available
Contact:
Apurvi Desai
Apurvi.Desai_no_spam_please_@i_mean_it.no_spam_whatsoever.asterand.com
313-263-0960 x231
Bioserve
Samples available: DNA, RNA, serum, plasma from 450 MS subjects and subjects with othe conditions, as well as controls
Prospective collection available
Contact:
George Taylor, M.D., Vice President of Medical Affairs
gtaylor_no_spam_please_@i_mean_it.no_spam_whatsoever.bioserve.com
215-840-2101
fax 215-628-2765
Coriell Cell Repositories
Samples available: Cell cultures from small number of MS subjects; extensive collections of DNA and cell cultures from other conditions (may be useful as controls)
Contact:
ccr_no_spam_please_@i_mean_it.no_spam_whatsoever.coriell.org
800-752-3805 in the United States
856-757-4848 from other countries
MSBase
Samples available: Data only MS Patient Registry from over 6,000 people.
Prospective collection available
Contact:
Dr. Helmut Butzkueven
msbase_no_spam_please_@i_mean_it.no_spam_whatsoever.mh.org.au
North American Research Committee On Multiple Sclerosis (NARCOMS)
Samples available: Data only MS Patient Registry from over 32,000 people.
Contact:
Dr. Denise Campagnolo, Director
narcoms_no_spam_please_@i_mean_it.no_spam_whatsoever.chw.edu
602-406-6286
PrecisionMed
Samples available: DNA, RNA, serum, plasma, urine from 500+ subjects
Prospective collection available (including CSF)
Contact:
John Flax, MD, President
johnflax_no_spam_please_@i_mean_it.no_spam_whatsoever.precisionmed.com
858-847-0117 x215
Rocky Mountain MS Center Tissue Bank
Samples available: Autopsy material from > 150 MS subjects and additional autopsy material from subjects with other diagnoses; sample types per subject include one or more of the following: snap-frozen, slow-frozen and formalin fixed brain and/or spinal cord, serum, and CSF
Contact:
Ken Dole, Tissue Bank Coordinator
dolek_no_spam_please_@i_mean_it.no_spam_whatsoever.mscenter.org
303-788-4806 (telephone)
303-788-5418 (fax)
Erik Nilsen, Tissue Bank Research Associate
nilsene_no_spam_please_@i_mean_it.no_spam_whatsoever.mscenter.org
303-788-4030 x105 (telephone)
303-788-5418 (fax)
Sera Laboratories International
Samples available: May or may not have MS samples (sent request for information, have not heard back yet)
Contact:
sales_no_spam_please_@i_mean_it.no_spam_whatsoever.seralab.co.uk
Sonja Slifka Longitudinal Multiple Sclerosis Study
Samples available: blood and DNA from 2,000+ MS subjects
Contact:
Dr. Nicholas LaRocca
nicholas.larocca_no_spam_please_@i_mean_it.no_spam_whatsoever.nmss.org
212-476-0414
UCLA Multiple Sclerosis (MS) Human Neurospecimen Bank
Samples available: Pre- and post-mortem CSF, serum, urine, and post-mortem brain tissue from subjects with MS, subjects with other conditions, and controls.
Contact:
Rashed M. Nagra, Ph.D., Director Human Brain and Spinal Fluid Resource Center
brainbnk_no_spam_please_@i_mean_it.no_spam_whatsoever.ucla.edu (for tissue requests)
RMNbbank_no_spam_please_@i_mean_it.no_spam_whatsoever.ucla.edu (Dr. Nagra's e-mail)
UCSF Multiple Sclerosis Genetics Group
Samples available: DNA (to qualified researchers studying the genetics of MS)
Contact
msdb_no_spam_please_@i_mean_it.no_spam_whatsoever.ucsf.edu
